I suppose my reading room is now my writing room

One nice thing about writing a personal blog is the ability to go back and find things I've shared, when my own memory is fuzzy.  For instance, on May 24 I posted a blog titled "A Big Setback" where my daily discomfort level from long covid had really escalated, and I was letting everyone know I may not be around for awhile.

Looking back, I was wrestling with a lot of oral inflammation and only eating very bland things when my gallbladder ruptured 2 weeks later on June 7.  That week in the hospital, after the two surgeries and on a liquid diet, I had to keep asking for low sodium broths because my covid-related BMS (burning mouth syndrome) was making me hypersensitive to any spices or salt.  

A week or so after I returned home on June 20, the symptoms began to let up.  And when my friend Kim went with me to Mercy Hospital for a post surgery follow-up on June 25, my covid symptoms had greatly reduced.  I confided to Kim I was feeling pretty optimistic.  I posted a photo of us on my blog, and my sister told me I looked like my old self.

Of course, the long covid symptoms returned that weekend.  They lasted a week, winked out a couple days (allowing me to meet up with some friends from the senior center for lunch, my first outing in 8 months) then returned again on July 17.  

These last couple weeks have been tough.  Lots of inflammation in the eyes, burning in the left side of head and mouth, and that heavy, strange smell of diesel fuel and decayed flowers. 

For the past year, I've been avoiding all videos and articles pertaining to long covid.  But these past couple weeks left me wondering if there's any kind of answers yet.  Nope.  Medical experts claim the US has 10 million documented cases, the UK has 2 million.  They said the real numbers are probably double that.  They also claim LC comes with 300 different symptoms and remissions are common, giving many sufferers false hope.  

Most sufferers remain in isolation, and say they've lost their jobs, family, friends.  At least I can't lose my social security.  Still, I read my blogger friends weekly adventures and wonder when I'll be back out there again.  

My senior center has a restaurant outing on August 12; I asked to be included, fingers crossed...

When I was first hit with this in early 2024, I had a busy calendar and hated the thought of canceling anything, especially a Titanic exhibit.  I never dreamed I'd still be missing out on things 2 1/2 years later.  

For now at least, I'm blessed to still have people in my life I enjoy spending time with on the phone.  My friend Diana in West Virginia, my sister Shawn, my friend Pen who I've known since grade school, my dear friend Kim (who I refer to as Kimba, she's a two-time cancer survivor and white lion).  They've all spent hours with me on the phone, and I would be lost without them.

To the readers out there who read my posts and leave comments, thank you.  You really matter too.  I feel bad, I came in here to do some reading on my tablet and the next thing you know... I need to wrap this up, my bottom is numb.  Until next time. 😌

Medicare Advantage is here--and it's a small world after all

Here it is, my "Welcome to Medicare" letter from UPMC Health Plan and Medicare Advantage card.  Two weeks ago I spoke with Virginia, an independent Medicare agent and it couldn't have gone better.  

Virginia said I could come to her office, she could come to my home, or we could have a Google Chat (like Facetime) on our tablets.   

I elected to do the online meetup, though I still ran in the bathroom and shaved and combed my hair before we got things started. 👨

She asked me how old I was, I said I was turning 65 in 3 months.  She told me the first thing I had to do was go to Medicare.gov and enroll.  She could walk me thru it, but we wouldn't be able to continue until I got my card in the mail.

I said I applied for Social Security in January, which automatically enrolled me in Medicare and I already got my card a couple weeks ago; did she need the number?  She said "I have a feeling you're going to be my easiest client today."

I told her I had several Medicare Advantage plans already selected from 3 different insurance carriers:  Aetna, Highmark, UPMC.  She asked if I had any recent medical history and I said boy, do I.  Two operations in June, one on my liver's bile ducts and then a gallbladder removal.

She asked if I knew how much my out of pocket costs were, after insurance.  I told her $880.00 (including ambulance).  We determined that Medicare thru UPMC was closest to my current insurance plan--and my familiarity with UPMC hospitals made them the preferred choice, so I wound up going with UPMC for Life HMO Premier Rx.

After we did the electronic signatures and everything, Virginia asked about my ice pack (I was occasionally holding against the side of my face) and asked if I was suffering with a migraine or allergies.  I told her I had long covid, a chronic inflammatory condition.  She said "I'm so sorry!  My sister-in-law has long covid!"

That's when the conversation got interesting.  Her sister-in-law got LC in 2022 and was forced to take a leave of absence from her job as a school teacher.  After 2 years, she was hardly any better but was close to 60 so she retired early instead.  

Like myself, Virginia's sister-in-law gets hopeful days here and there, but the relapses just keep coming.  She doesn't see an end in sight.  I told Virginia it does feel hopeless at times but you have to believe it will end sooner or later.

One thing I appreciated, Virginia complained her glasses were bothering her nose and she had to get a new pair soon.  I said I did too, mine fit fine but were 8 years old.  After we hung up, she called me right back and told me to hold off on those glasses a little bit longer, I'd be getting a Flex Spend card soon I can use towards them.  Works for me.

Well, I almost didn't blog about this (it's boring, I know).  But I'm glad I did---when I was inspecting my Medicare card to see what to gray-out before sharing, I noticed it said "NO PCP SELECTED" on it and I did give them my new PCP, Dr. Cole.  I just called and reported this, they said "Someone messed up, you'll get a new card in 10 days."   Not exactly a great start, UPMC!

Here's Dr. Cole's photo.  He's a handsome devil, but very smart and very kind.  I like him a lot.

Gallbladder Chili, hope for nicotine & a couple other things

I know they've been around awhile, but aren't freezers remarkable things?  Back on Sunday, June 7 I made a small pot of chili for dinner.  But while it was bubbling away, I was fast losing my appetite and didn't know why.

I wound up letting the chili cool, pouring it into a container and putting it in the freezer.  3 hours later, I was in an ambulance, headed to the hospital for a blocked bile duct and emergency gallbladder surgery.

It's been hidden in the back of my freezer ever since, along with a frozen Italian roll.  I'd forgotten about them until last night when I was trying to make some room in there.  And seeing as how it's Thursday, and Soup Day in the Teepee... I wonder how it will taste.

Okay, it's delicious.  I just keep thinking, when I made this chili I had a gallbladder.  Ah well!

Yesterday my sister texted me and said she'd recently learned that GLP-1 drugs have been helping people with long covid.  I contacted my doctor's office and left a message, a couple hours later they returned my call and said Dr. Cole would discuss it with me early Thursday morning.  

Last week I had 2 relatively good days, Tues & Wed.  I was able to attend that Senior outing for lunch at the Old Sewickley Hotel.  But since then, the symptoms returned with a lot of inflammation in my temples and around my eyes, and pain in the jaw & mouth.

Dr. Cole is a young doctor, but honest and knowledgeable.  He told me he would not prescribe a GLP-1 for me for long covid symptoms.  He asked me if I'd gained a lot of weight since my last visit (last Sept) and I said I'd lost almost 20 lbs. since last summer.  He said "You probably have a high BMI but not enough to qualify.  Douglas, you have a history of issues with your pancreas, kidneys & liver.  Those GLP drugs put you at a higher risk for further complications."  

I told him about NHS studies of low-grade nicotine patches helping some with their long covid symptoms and he said "Can't you try upping your dosage of acetaminophen?  Those patches are for smokers and can adversely affect people with hypertension.  If you want to try them it's up to you, but you'll need to monitor your blood pressure."  Will do.

After I got off the phone with him, I put my first patch on my left underarm.  Here goes nothing.

It just occurred to me, today is my dad's birthday.  He died nearly 27 years ago and would've turned 90 today.  It's hard to believe he's been gone so long.

Finally, have you seen the movie "Obsession" that was released earlier this year?  Made on a shoestring budget of $725,000 it earned over $400 million at the box office.  I said awhile back I was done with horror movies, but saw the film was playing on Peacock this past weekend and curiosity got the best of me.

The movie is about a young man who has a secret crush on his friend & co-worker Nikki.  One day he buys a "One Wish Willow" stick at a novelty shop and wishes Nikki loved him more than anyone else in the world.  So what happens when his wish is granted?  It both is and isn't what you'd expect, but I found it brilliant as it was horrific.  

The next day, my niece Sophia texted me and said she'd heard I seen it, and would I recommend it.  Her boyfriend Luke wanted her to see it.  I warned her it was very good but wasn't pretty.  She told me later she did like it, but covered her eyes a couple times.

Speaking of pretty, here she is with her young man Luke.  All I can say is... my goodness.