This past Saturday, I woke up feeling pretty okay—an hour later, a “spray” of pain washed across my face, stayed there for around 2 hours before going away.
But as the day wore on and it didn’t return, I began to feel elated and wrote that goofy post about my 30 year old vacuum cleaner. Things were looking up, it seemed.
Sunday morning, I awoke and the left side of my head felt like it had been crushed by a giant’s boot. I got up, paced for an hour or so and waited for it to fade away. It didn’t and traveled into my face instead, and I spent a beautiful Sunday afternoon indoors, laying on my bed feeling angry and depressed.
Monday I awoke, and other than a very sore face felt pretty good. I did my laundry, went for a walk, and later that night I spent a couple hours on the phone chatting with my friend Diana, and for the first time in weeks this post covid crap never came up once.
(Instead we talked about Diana’s upcoming trip to Utah to attend her son’s wedding, and her plans of organizing our high school class’ 45th year reunion. I applaud her efforts, but have little desire to attend. But that’s another story.)
Tuesday was a very bad day and I spent the day laying on my back on my bed again. This seems to be becoming an “every other day” thing, but I hope that’s a sign I’ll soon have more good days than not and finally get to leave this long covid beast in the past where it belongs.
This was my face last May, and here it is last month; it’s gotten better, but still looks like the second photo in the mornings when I get out of bed.
When I leave my apartment before noon—to get my mail, take out the trash or do my laundry and other residents see me, I always hear “What happened to you? Were you in an accident? Did you get beat up?” I just tell ‘em it’s allergies.
- The more often you contract covid, the greater your chances you’ll get long covid (this past December was my third time getting the virus since 2020)
- Even though studies say long covid cases last on average 4-6 months, the center hasn’t seen anyone fully recover before 6 months
- They’ve also never seen a patient “spontaneously recover”; recovery is very, very slow
Well, I got covid the first week of December and these post-covid symptoms began emerging the first of January, so I’ve now been living with this 4 months. (As of May 1, I’m in my 5th month.) Why does it seem so much longer? Anyway, I am seeing some improvements here and there, even if they’re small.
I’ve said it before, but I don’t know how I would’ve made it through these past few months without my friend Diana, who has been on the receiving end of some pretty long phone calls. I can’t believe what a patient, caring person she’s been. I’m very fortunate to have such a friend.
Also, this blog where you kind people have hung in there while I pound out my 10th post about this. Thanks as always for letting me share.
Good morning Doug. The photos are dramatic, to say the least. I can't imagine how discouraging it must be to suffer so, and not know when the suffering will end.
ReplyDeleteI'm glad you are still up for writing your blog. Your faithful readers love to hear from you. Take good care of yourself. I'm hoping the end of this dreadful long covid is coming soon for you.
Carole
Thanks very much Carole, I wasn't going to share that photo but I guess I just felt the need to prove my case after all these posts. Very much appreciate your kind words.
DeleteI second Carole's comment. I truly hope you are soon going to get over this awful side effect of Covid. The pictures tell the story, for sure!
ReplyDeleteThank you DJan, much appreciated. I am anxious to get back out there like you!
DeleteTerrible. I can't imagine what you are going through. I have chronic diseases, too, but they are not as overt as yours.
ReplyDeleteGigi I sure am sorry for your own issues. I am going to beat this for sure.
DeleteGood morning Dug. It's not a great morning here either... but nothing like you're going through. I've been waking up with a headache and ocular migraine lately. It takes a while for it to clear up, but it does clear up eventually. Just wanted you to know that your blogger friends have you on their minds 'a lot'... and are praying that this long covid thing remedies itself soon (thoughts can be powerful things). And it has also made me more curious about long covid - so I read as much as I can about it. They seem to be learning more, but not fast enough.
ReplyDeleteTake care, my friend. This too will pass... (hopefully soon).
Thanks very much Rian, and I hope you keep us posted on your migraine.. that's exactly how mine started, but it would clear up by noon. I very much hope yours doesn't go anywhere, and I appreciate your kind support here.
DeleteYou certainly have every right to feel depressed and sad. This long, on-going illness, with no end in sight, can get a person down. I'm sorry that the doctors have no answers to make it all go away. Isn't that what we all want with our ailments, for it to just go away? It's a new month, and I hope a better one for you.
ReplyDeleteThank you dkzody--it's a strange thing, felt optimistic in the morning when I wrote this, pessimistic now, it changes so much during the day. I just gotta believe it's going to get better, sooner or later. I'm a pretty average guy, so if the average duration is 4-6 months...
DeleteIf long covid is being considered an allergic reaction, would an allergy pill relieve symptoms? An over-the-counter antihistamine might be worth a try. I like 24 hour Allegra. My late uncle had allergies and he occasionally experienced swelling of the face. He took Allegra when he felt the swelling build and it helped tremendously. It does seem you are slowly getting better and the swelling is not there all the time. Long covid is lasting much to long. Hopefully Mt. Sinai will find effective treatments.
ReplyDeleteThank you Susan, to be honest my pcp made the same suggestion regarding an antihistamine and it had a disastrous effect, my face was 9n fire for hours. That's swelling isn't so much an allergic reaction, I think it's just the pressure in my Cranium pushing down on my sinus passages. But I'm always willing to try everything and anything! Thank you for the encouraging words, I'm getting there.
DeleteThis is terrible, Doug! I'm glad that you're seeing some positives though. I'm such an impatient person that I would struggle a lot with my mental health under these circumstances. And I too would write about it on my blog because that's what it's for!
ReplyDeleteThank you Margaret, I always appreciate your wisdom and honesty. You are so right about mental health, it’s been a real struggle to not lose it. I just keep telling myself this too shall pass.
DeleteGoodness Doug, your poor face! You must just be so utterly exhausted from all this.Glad to read you are having some improvements. Glad also you have Diana, she is such a good friend.❤️
ReplyDeleteTake care!
Robin
Thanks very much Robin, you're very kind. I know I keep sharing this same old stuff on here, I just have little else to write about now. Please let me know how Chuck is doing when you can, I've been wondering a lot about him.
DeleteHe is doing good Doug. Just has to wear sunglasses a lot! Lucky he looks so darn good in them!🥰
DeleteI certainly hope you are on your way to a full recovery. Goodness, that inflammation looks painful, and the accompaning depression must be difficult too.
ReplyDeleteFingers crossed that your good days soon outnumber the bad and in a few weeks you'll be back to your regular self. We'll all rooting for you!
Thanks very much Maebeme, your kind words are much appreciated! :)
DeleteWe’re here for you. However, being here is a long way from being there (16,000 kms as the crow flies, and he’d be a very tired crow).
ReplyDeleteI thought the same as you that the on again, off again symptoms will lead to a lot more offs than ons. Let us all hope so.
Why is there a black and white version of the New Mexico flag at the end?
Thank you Peter, much appreciated. I always look forward to your comments. As for that NM flag, I collect Native American symbols to sometimes end a blog-post with, it has no real significance.
DeleteWow, the swelling is dramatic! At least you are having a few good days. It’s always good to have a friend to talk to, in good times or bad. Hang in there! Joyce
ReplyDeleteThank you Joyce, I always appreciate your feedback. I hope you're well.
DeleteSorry it's taking so damn long. But, six months and fini!
ReplyDeleteJoanne, haha! There's no guarantee of that but I certainly hope so!
DeleteThe Dino illustration is hysterical - even with all your health trials your sense of humor shines through. I wonder if you have shared the comparison pictures with your helpful doctor? It's very striking and of course Doc has only seen you since you became ill.
ReplyDeleteWarmest regards, please keep on keeping on, we are counting on you.
Ceci
Thanks very much Ceci, I'm glad someone appreciates my humor. No I didn't show my doctor any pics, but truth be told I'm no longer seeing any doctors for this. I'm convinced this has to heal on it's own. I'll be seeing him again this July for my annual physical, I will bring it up then--maybe :^)
DeleteI'm glad to hear that you are having good days. It is a horrible state to be in. I am also hoping that the six months is the deadline for this stinking virus to leave you. One day at a time, but there have been enough days!!!
ReplyDeleteSo nicely said, thank you Miss Merry!
DeleteGlad to hear of these flickers of improvement. It is so hard to feel bad. You haven’t whined at all. Something like this is all consuming, and yes, your sense of humor has still popped up! Best wishes for continued and longer moments of relief. Olivia
ReplyDeleteI just keep reading this over & over again. Olivia, thank you so much. This cheered me up this morning. :)
DeleteJust . . . hang in there, keep improving, feel better, get well. We're all rooting for you.
ReplyDeleteThank you Tom, and it sure is good to hear from you. 🙂
DeleteSo sorry you are going through all this..hope it ends soon..
ReplyDeleteOn a side note drove across country went to Utah beautiful state
Beth
Thanks Beth, and wow--that sounds like quite a trip. My friend Diana is flying there in a couple weeks for her son's wedding.
DeleteMy brother was living in redondo beach in Los Angeles and he wanted his jeep. He could have had it shipped or me my sister and cousin could drive it across country to him and then take the Amtrak train back to Pittsburgh..tge cost was about the same so we decided to drive across country…such a fun trip..my brother has since moved back home in 2016 right after my dad died…but Utah is an understated state..it was gorgeous..I hope your friend Diana enjoys her time there!
DeleteBeth
Like everyone else I wish you a complete return to health - I almost wrote speedy but realised that wouldn’t acknowledge everything that you have been through in recent months . It’s always good to read your posts , and I hope soon the days that are good outnumber those which are not -
ReplyDeleteAll WILL be well
Siobhan
Thank you Siobhan, I always appreciate your kind words. And I will take speedy, the sooner this is over the better. :^) I hope you're doing well.
Delete