Tuesday, February 4, 2025

Red-faced, and not in a good way. Is it ever in a good way?

Last night I was watching an old episode of Scrubs on Peacock, and having a good laugh (I loved that show back in the day) but I couldn’t stop yawning.  It was only a little after 8pm, what’s going on?

That’s always the first sign, but I never seem to remember that.

I finally gave in, and around 9pm I took my BP (blood pressure) pill and got ready for bed.  As I’m laying there reading, my nostrils suddenly filled with the distinct smell of burnt hair and medicine.

Now I know what’s coming.  It will be here between 4-5am.

I jump out of bed, grab my water bottle from the fridge, place it on the floor beside my bed.  In the early morning hours, I’m going to awaken with a lot of head inflammation and a bone-dry mouth.

As I sit here typing this at 7:31 in the morning, my temples ache and my face burns like a bad sunburn, as does the top of my hands and back of my neck.  The irony is, I had a Facetime appointment with my neurologist’s office yesterday, and told them I usually have mini “long covid relapses” almost daily, but every so often I get hit with one overnight that lasts a week or more.

Dr. Yeeuogi said “Your blood contains spike proteins.  We see these spikes in patients with cancer or with chronic, long-term inflammation.  We know yours is the result of long covid, and this can persist for years.”  

I suddenly felt like I did the night Trump won the election, utterly defeated.  At the same time, it’s not as bad as it was this time a year ago.  Last February I was at the senior center, only a few people had shown up for lunch because of a big cold snap, and I was enjoying a second serving of stuffed chicken breast & orzo.  Still, I told the ladies who work there, something was really wrong with me and I wouldn’t be back for awhile.

Things have improved a lot since then, but they could also be so much better.

I’m not sharing this relapse looking for attention or sympathy, I’ve had enough of both.  I’m only sharing because if I don’t, people I know asssume I’ve made a full recovery and are confused why I’m not jumping back into things. 

When I get good days, I get out there.  When I have bad days, I get depressed, fed up.  It used to help me to talk about it, it doesn’t anymore.  Now I just want to sit here and bake and wait for it to be over again.  

The ER doctor at Mercy Hospital told me last March that long covid is a series of relapses and can last a couple of years.  At that time, I was only in my third month.  Now it’s month #14, but I’m more confident this will end.  Thanks for listening, looks like I’m done!

38 comments:

  1. Thinking of you Dug and so sorry you're going through another bout. Was interesting to hear about spike proteins; I think I'll do some googling on that topic. On another topic, I want to say that you are a wonderful writer; you really know how to tell a story. I admire that and it's what keeps me attuned to blogs. Thank you for sharing your life and your talent here with all of us who do care about you and hope this will all be history for you soon. Kim in PA

    ReplyDelete
    Replies
    1. Kim--you just made my day, I mean that truly. Thank you so much.

      Delete
  2. The crazy thing about this long covid is that it seems like it is a completely different set of symptoms, patient by patient. Like Kim, I found the 'spike protein' thing very interesting. 14 months is a long time to be dealing with this, and I understand how it could make you depressed and hopeless. The only positive thing that I can say is that you are 14 months closer to being finished with this than you were last year. I have a serious question though. When someone is dealing with symptomatic long covid, what are the recommendations for getting a covid vaccine? Do you avoid them because they could trigger those spike proteins or is the fact that they deal with variants of the covid enough to allow you to have them?

    ReplyDelete
    Replies
    1. Debby thanks very much (and I'm sorry for the delay here, your comment went to my spam folder). You are a smart cookie and this was a very good question, I worried about getting the vaccine this past year. Would it make things worse? Help? My doctor said that long covid is independent of any covid virus and would not worsen or help the present symptoms. So I did get my shot this year. I got a fever and the shakes the night of the injection, but they faded in one night.

      Delete
  3. I echo what Kim has said - you are a wonderfully expressive writer - when I read a post it feels like you are sitting in the room with me , having a conversation, making me laugh ( or cry ) with your observations on life . I hope you continue to write - and I am furious on your behalf that long covid won’t just f **k off and leave you alone
    Siobhan

    ReplyDelete
    Replies
    1. Siobhan, you are very sweet and thank you for these kind words and chuckle! :^)

      Delete
  4. I'm so sorry you are going through this Doug. I can think of several people who denied Covid existed even though they became ill, that I wish would be afflicted instead. Hopefully this relapse won't last long and your good days will be more frequent.

    ReplyDelete
    Replies
    1. Thanks very much Maebeme, I remember those deniers too. (I don't get it, why deny it's existence?) I know a couple people who died from it, I'm lucky in that respect. Thanks again and I hope YOU are well.

      Delete
  5. It sounds like you have your physical and mental coping mechanisms--which I admire. I would be angry and depressed all the time, so I admire you for taking each day as it comes. I'm so sorry that you're still dealing with this crap! If I were a different sort of person, I would wish it on all those Covid deniers and anti-vaxxers instead. Mean Margaret.

    ReplyDelete
    Replies
    1. Margaret, I'm so glad we're friends. Thanks very much, you know what a fan I am of your honesty. It means a lot. :^)

      Delete
  6. Oh Dug, when we think things are on the mend, something happens to bring us back... or so it seems. I wish those 'spike proteins' or whatever it is finally just fade away. I too think about those Covid deniers... and remember how my 2 daughter-in-laws who are nurses told us how they watched people in the hospital die horribly with Covid during the pandemic. And the truth is... it's still around (mutating).
    But please hang in there, Dug. We miss you when you don't post (although we understand). Sending you virtual hugs and good vibes!

    ReplyDelete
    Replies
    1. You're very kind, thank you Rian. I feel just the same way about you when I don't see your posts, and you're in my thoughts every day. And yes you're very right about these covid deniers, I don't get it... I just feel fortunate mine wasn't fatal at least.

      Delete
  7. Doug, I am so sorry you are having a relapse. We all appreciate so much that you take the time to keep us updated. What is it with smells?? After our bout with Covid around Halloween I smelt what I thought was diesel fuel for a month or so. Chuck to this day will smell what he says is cigarette smoke. It comes and goes. I am so glad you are getting out and about on your good days. Phooey to the Covid deniers!!
    Take care.❤️
    Robin

    ReplyDelete
    Replies
    1. Robin thank you very much and this is blowing a mind. For a solid year I smelled diesel fuel too. (I wrote about it here a few times and told my neurologist, friends, etc.) I have read others that smelled cigarette smoke like Chuck, or rotted meat (gross). Around a month ago, it began "morphing down" into burnt hair, and a mediciney back odor which I am hoping is a good sign. Thanks again R, I am getting there :^)

      Delete
  8. The smell of burnt hair and medicine! Spike proteins in the blood! Aching temples and burning skin. Sounds absolutely awful, Doug. Sure hope these symptoms are soon just a bad memory. Hang on the the thoughts of better days ahead. ❤️

    ReplyDelete
    Replies
    1. Thanks very much Florence, I know I'm getting there but all these specialists say long covid has the longest recovery times they've ever seen. I just keep reminding myself, it could've been much worse. I should've given up city living for the farm life like yourself. :^)

      Delete
  9. I'm so glad you share all this information with us. First person accounts of things are so much better than clinical or technical documents. I hope to never need to know so much about long covid, but I am kind of fascinated by the symptoms you describe and amazed that you can predict them so accurately. Like Kim and the others, I think you're a very gifted, expressive writer and I'm always happy when you check in with us. I look forward to the day when you can share that this siege is behind you.

    ReplyDelete
    Replies
    1. Bobi you're very kind (you always are) and I appreciate very much what you said here, thank you. Like I wrote, not looking for attention or sympathy but I admit I appreciate the support.

      Delete
  10. Oh Doug. I wish I could offer some thoughts that could help but, as somebody that also deals with a chronic health issue, I can relate. I’ve been dealing with it for 8 years now and stopped driving a little over a year ago. I understand the feeling of defeat, hopelessness, anger, and just being exhausted by the battle. Hugs to you, my friend.

    ReplyDelete
    Replies
    1. Jase I'm so sorry, I didn''t know your own health wasn't good and 8 years too? :-( Thank you for what you said here, and for sharing your own too, makes me feel less alone. Hug to you too, Commander.

      Delete
  11. You know I think nothing stinks like long covid. The other person I know suffering doesn't deal with it as well as you do. You remind me to be more positive. Thanks.

    ReplyDelete
    Replies
    1. Thanks Joanne, I agree it stinks! But I'm not sure I'm handling it as well as you think, I put on a good front here. :^) But your words mean a lot, and I'm sorry about this other person you know. Wouldn't wish this on anyone.

      Delete
  12. Covid sucks long covid sucks even just hang in there

    Beth

    ReplyDelete
  13. Some long-term COVID patients develop histamine intolerance or Mast Cell Activation Syndrome (MCAS), where immune cells overreact.
    Symptoms can include burning skin, flushing, headaches, and dry mouth.
    Have you noticed reactions to certain foods, temperature changes, or stress? Cutting out alcohol, caffeine, and inflammatory foods might reduce symptoms. Also, antihistamines usually help. All the best.

    ReplyDelete
    Replies
    1. Anon--burning skin, flushing, headaches and dry mouth are my 4 biggest issues. I have not noticed reactions to certain foods (my friend Diana asks me the same questions) but I am going to start tracking my diet and how it ties to these longer episodes. Thanks for your advice.

      Delete
  14. Man, you are going through it. Thank you for sharing though. I am glad you can write and I am still sending you good thoughts. Olivia

    ReplyDelete
    Replies
    1. Thanks Olivia, I really do appreciate those good thoughts. And I appreciate very good people lke yourself who lets me share this with you, I mean it.

      Delete
  15. I too admire your ability to express yourselves so well. And I am also chagrined that you are STILL dealing with this, more than a year later. Hope this resolves soon!

    ReplyDelete
    Replies
    1. Thanks DJan, your words mean a lot. I know you're dealing with your own health issues and I very much hope you get better news soon as well.

      Delete
  16. Just awful, Doug. So glad that I have never had Covid. Never. Neither has David. It's because we stay home a lot. However, David has been going to Straub frequently in order to prepare his cataract surgery on Feb. 18. Hope he doesn't catch Covid there.

    ReplyDelete
    Replies
    1. Thank you Gigi.. well, I'm sure you both have nothing to worry about. I got long covid after my fourth covid infection (and I got all my shots too). The more times you have covid, the greater the chance it becomes long covid. As for David's cataract surgery, doesn't this poor man get a break? I know his past year was much rougher than mine. Please keep us posted on your blog.

      Delete
  17. Replies
    1. Thanks Miss Merry. I've been wondering about your son-in-law, I sure hope he hasn't had any setbacks.

      Delete
  18. Long COVID I don't think they know exactly how much damage it's done to Survivors and I'm so sorry yours is so extreme! I'm going thru some Health problems they can't finger, so is my Friend Sal, and we both wonder if it is a Post-COVID related thing since each of us had a bad case of it during Pandemic? I've got Tests on top of Tests, so far they haven't been able to tell me much about why I've got the Symptoms I do. Had a Stroke just before Christmas, first one ever, and the Post-Stroke Symptoms my Cardiologist and Neurologist say I shouldn't be having... yet, here we now are. Stay Strong. I hope this episode passes quickly for you.

    ReplyDelete
    Replies
    1. Thank you Bohemian, my God I am very sorry about your recent stroke. As for my own situation, I don't know what to say or do at this point. These relapses are wiping me out. I sure hope you get some real answers soon.

      Delete
  19. Loved your newly added movie reviews. My favorite spot to visit in the blog. Wasn't the music in The Wild Robot wonderful?

    ReplyDelete
    Replies
    1. Thanks Shawn, I'm glad you appreciate those mini reviews. And yes, the music in Wild Robot was old school and beautiful :^)

      Delete

Thanks for stopping by. I'm glad to hear from you and appreciate the time you take to comment.