A letter from Shelley and taking things day by day

I occasionally get emails from people who read or have seen my blog and want to offer some advice, or share their own experiences.  Yesterday I got this email from someone named Shelley:

I’m sorry to read about your long covid Doug I’ve had long covid for six years. As a nurse I got it in my lungs in 2020 while working a Covid wing. In that time it took everything from me. Short of breath today as I speak my lungs burn but it comes and goes. But when it hits hard I want my life to end. I get so depressed. Before covid I loved to dance and exercised all the time. Now I work part time with severe neuropathy caused from Covid. I’ll smile through any symptom except for the shortness of breath it gives me and when I feel inflammation in my brain, the dark thoughts it gives me. What did help was antihistamine and Prilosec. That was a game changer but sadly it wasn’t a cure. Take care and good Luck Doug. Shelley.

I know this wasn't a pleasant read, I'm sorry about that.  I don't know this woman, but my heart still broke for her while reading it.  I totally get it, the anxiety, depression, the dark thoughts.  I earnestly pray for a miracle for Shelley.  (Shelley if you're reading this and want to talk, contact me.)

For all the blogging I've done about this, and sharing with friends, it's still something you pretty much suffer with alone.  I am coming up on the one year anniversary of the return of my long covid, and it didn't make sense the first time I had it, and even less sense now.

I suffered with this for 18 months--from January 2024 to late May 2025--before it began fading for good.  Aside from a 20 minute episode almost daily last summer, and a scary 4 day relapse in July, by late August 2025 I considered it pretty much over.

 (Late August was also the time I got plantar fascitis in both feet, and I had a real temper tantrum over that.  I should've been thanking my maker that the long covid symptoms were gone.)

When I made that dental appointment to get one cavity filled (not the 5 or 6 that shyster claimed needed drilled into and filled) I was 100% certain I was LC free.  He saw me on September 4 for x-rays and a very, very intense cleaning with scrapers and a rotating sand wheel that lasted over an hour and I was STILL absolutely fine the next day.  

It's when I went back on September 11 and he began that drilling, injecting 3 shots of lidocaine into my face and then that one injection of articaine, that did it.  I'm convinced that articaine was the "trigger" for the return of the long covid.  It sent me nearly all the way back to square one.

Anyway, it's been nearly a year now and I get glimpses of hope--but they never seem to last too long.  I was very, very fortunate last Wednesday when I was able to go on that lunch outing at the senior center.  While waiting for the Access shuttle to arrive, my dear friend Mary came in and we got to chat for awhile.  It felt so much like old times.  

But later that night, when I called my friend Diana to tell her about the day, the right side of my face was hurting so badly I had to cut our conversation short.

I look back on this past summer, spending those 8 days in the hospital, the 2 surgeries, the at-home physical therapy and rehab for walking and breathing, I'm almost surprised how successfully that all turned out.  So why can't this?   

I have to believe this isn't going to last forever, it just needs time.  But I'm turning 65 in 2 months and time isn't something I have in abundance.  Okay I'm done, just needed to get this off my chest.  Thanks as always for letting me share.

PS.  I'm finishing up a more lighthearted post I'll be sharing here real soon, I hope you dig it!