Sunday, April 7, 2024

From Blog-O-Vision City in the Teepee… it’s the Waiting Game!


Before I say another word… feel free to roll your eyes and close my blog.  I wouldn’t blame you.  I promised myself I wouldn’t keep writing about this godawful long-covid thing, but I can’t help it.  April 16 will mark the start of my fourth month dealing with this, but for some reason it feels longer.

I got covid the first week of December, it lasted one week, and precisely one month later on January 16 I began getting an intense pressure in my skull and sparkles of pain in my face and lips, and worried something bad was developing.  One month later on February 21 I told my friends at the senior center I’d be taking a leave of absence until this was over.

If you look back thru my posts, I thought it was my TMJ returning from a few years back; a month later, my PCP misdiagnosed it as chronic sinusitis.  I pretty much determined it was long covid, thanks to a couple of excellent PBS documentaries on Youtube and people with eerily similar symptoms on Reddit. 

In fact, these other people’s stories have been downright uncanny.  Ignoring the symptoms for a month, seeing their PCPs, getting misdiagnosed with sinus infections, eventually going to the ER and getting MRIs or CT-scans, being put on nerve drugs like amtriptyline or gabapentin.  (I’m on the latter.)  And then waiting.  That’s all you can do.

Friday morning I got my ER bill for March 22 and the two CT scans. $494.21.  It could’ve been a lot worse. 

I think that luck is on my side, though.  The pain and pressure in my head is 70% gone.  The facial pain is still here, from a dull burn to a heavier one as the day progresses, but Ben-Gay on my neck & face helps a lot come bedtime.

I’m dealing with pretty severe fatigue too, can’t explain it.  I feel okay unless I do something like walk to the store.  When I get home, I feel like I’ve been working in heavy construction all day.  I lay across my bed and pass out for 1-2 hours.

Also when I get up during the night to use the bathroom or get a drink of water, big dizzy spells.  And in the mornings… how do I say this.  Something that most men always wake up with.  I don’t anymore.  Not since February, anyway.

(And all of that is long before I started taking gabapentin.)

But I know I’m getting better, I can feel it in my bones.  Half of the people I’ve read about took anywhere from 4-6 months to recover enough to resume normal living; the other half took 1-3 years.  I will be in the first group, if you please.  Thanks God.

Here’s one good thing from all of this; for as long as I can remember, I’ve kept 2 tubs of ice cream in my freezer.  I’d have a bowl on Friday night, a BIG bowl of ice cream on Saturday night and a smaller bowl on Sundays.  Probably for the last 30 years.

I was all set to get a couple tubs of ice cream the Saturday I woke up with covid in early December.  I didn’t go out that day to buy any, but lost the taste for it after recovering a week later and haven’t touched it since. 

I haven’t been downstairs to my building’s exercise room in 3 months, but still managed to lose 12-13 pounds and keep it off.  So… thanks covid?

And thank YOU for reading.  My next post is going to be a funny (and true) story, about my neighbor I think.  Stay tuned!

37 comments:

  1. I guess you found one silver lining with long Covid - but it’s not a fun way to loose weight ( is there a fun way ? )
    Your physical health has really been hammered over the last few months - and that must have had an impact on your emotional health too - but what better place to share how you feel - you have created a great community here and everyone I think just wants you to feel better - and soon

    An Occupational therapist I used to work with referred to the fatigue of doing nothing - and when you are ill I think her saying is a good fit . You know the drill - plenty of fluids , rest and even a walk around your apartment once an hour may help you feel that you are in charge , not Covid

    Siobhan x

    ReplyDelete
    Replies
    1. This was such a nice read, thank you Siobhan. I was just thinking of you in fact, about a half hour ago. For the last 6 weeks I've been taking a hot soak in my bathtub. Been many years since I've taken a bath, but since discovering this eucalyptus oil bath lotion, it does a lot for the nerves and the skin. Thank you again for your kind words.

      Delete
    2. I am a big believer in the power of scents Doug -and good to ear the Eucalyptus is helping . I am also a big believer in music - the kids and I ( not little , 33 and almost 31) went to see a movie today - Robot Dreams - and the soundtrack was great - most notably Earth, Wind and Fire the 21st of September- it made me forget my woes
      Siobhan x

      Delete
    3. Sounds very nice Siobhan, I need to check that out. 🙂

      Delete
  2. Glad to hear you're finally making progress! Keep it up. Your ice cream story reminded me of my grandma's Asian flu story. Back in the 70s, I got the the flu, my mom got it worse and my grandmother got the jackpot version. She was a 3-pack a day unfiltered Camel smoker and I had been trying unsuccessfully to get her to quit. In fact, the week before she got the flu, I opened both of her cartons of cigarettes and taped handwritten notes on each pack begging her to quit smoking. She ignored the notes on the first carton as she blew through a normal week, then the flu got her and she quit smoking cold turkey. She never had another cigarette! She kept the carton with my notes in their regular spot for about 20 years, "just in case" she changed her mind. She had smoked for 43 years so it was an amazing accomplishment. I'd like to say my notes helped but she said it was the flu, and I'm sure it was, because that was some really bad stuff.

    ReplyDelete
    Replies
    1. Bobi, I so much enjoyed reading this, thank you for sharing. Loved the notes on each pack idea, I'm sure they helped! 🙂

      Delete
  3. I too vote for four to six months. That will offset the person I know who has had it for four years now. Best wishes for best luck.

    ReplyDelete
    Replies
    1. Joanne that scares me. I feel very sorry for that person you know, but that won't be me, I'm giving myself a May 16 deadline.

      Delete
  4. Glad to hear you are feeling better, one step at a time. I am a firm believer in the effects of positive thinking. I truly hope that your prediction is correct. This is a sneaky, lingering virus.

    ReplyDelete
    Replies
    1. Thank you Miss Merry, and yes you're exactly right. Sneaky & lingering. Every time I start to feel better... boom, back to square one. Enough.

      Delete
  5. I am so glad to hear you are definitely on the mend. And it's great to finally start feeling like yourself again after a long illness. Sending you some virtual hugs, friend.

    ReplyDelete
    Replies
    1. Thanks DJan, I know it's a tired topic... I just have little else to think or write about. Your kindness is appreciated.

      Delete
  6. Your Covid experience has been quite the trial. It is disappointing that long Covid is still being misdiagnosed. I'm glad to hear you are feeling a bit better and plan to be fully recovered by May. The power of positive thinking is great. Hot herbal baths are very good. Have you also tried Epsom salts in a hot bath? This is a good detox and it also eases muscle/bone aches and pains. Lemon ginger tea (by Yogi) is also very soothing for headache/cold/sinus issues.

    ReplyDelete
    Replies
    1. Thanks Susan, and that tea sounds absolutely perfect. I will look for that. As for the herbal bath, it does include Epsom salts and I've really fallen in love with my bathtub. Once I'm all better, the baths will continue. :^)

      Delete
  7. I do hope this is the genuine turning point for you, it's time for some real life living to come back to you. I remember eating BIG bowls of icecream, now I'm trying to shift it all off my bum and belly :(

    ReplyDelete
    Replies
    1. Thanks so much River, I always appreciate (and enjoy) your feedback. And I know just what you mean in regards to my own big belly, I should put a mirror on my refrigerator door. :^)

      Delete
  8. At least your creativity is undamaged, Doug. The Waiting Game over the retro photo is a clever opener. Looking forward to hearing your neighbour story.

    ReplyDelete
    Replies
    1. Thank you Florence, I'm glad someone appreciates my cheesy creativity, haha. Oh I hope you like this neighbor's story, it takes a weird turn. :^)

      Delete
  9. Good that you are recovering. And lost weight. Not eating ice cream helps, but what a guilty pleasure! Hope your sense of humor prevails.

    ReplyDelete
    Replies
    1. Thank you Gigi, and yep I was going thru "ice cream withdrawal" big time last night. Maybe that's a sign I'm getting better for real finally. :^)

      Delete
  10. I'm delighted to hear that you feel a bit better and are seeing a light down there in the tunnel someplace. I and I am guessing most of the commenters, read your blog because we have come to care for and feel connected to you, so while good news is best, the real scoop (ice cream allusion?) is what's important. So apologizing for being sick and feeling dull is rather beside the point. Of course I suspect you didn't set out to create this fan base, but that's the current situation as I see it.

    Maybe you would like home made smoothies in lieu of ice cream? Non fat, cool, sweet depending on the fruit included, and easy on the jaw?

    Cheers,
    Ceci

    ReplyDelete
    Replies
    1. Ceci, I do believe your wonderful comment just made my day. Thank you so much my friend. And I love the idea of a cold (but healthier) smoothie, how come I don't think of such things?? Really, you're very kind--and helpful. Thanks Ceci. :^)

      Delete
  11. Well, one thing you haven't lost is your sense of humour.
    I do hope you are correct, and your battle with Long Covid will be over shortly. I'm sure you are looking forward to getting back to the Senior Center and visiting with friends.

    ReplyDelete
    Replies
    1. Thanks very much Maebeme. Still battling these strange facial pains and fatigue, but with a lot of the cranial pressure under control I see a light at the end of this tunnel-- with family and friends there as well. I sure hope you are doing well.

      Delete
  12. Yes, I agree with you that you're "on the mend"--FINALLY. I can sense it in your writing! And, dropping 12 pounds is a win for you. I'm looking forward to your next post.

    ReplyDelete
  13. I’m glad you are feeling better and facing all this with humor..it’s so important to make jokes especially when are naturally funny and can’t resist the urge to make jokes about everything anyways..I had something Dec 21 which renders my sense of smell and taste useless..it might have been covid..I was too chicken to get tested..or just a really bad cold..I also got strangely ill fall 2019…but now I’m vaccinated..I hope you are 💯 soon!

    What kind of ice cream? I love ice cream

    B (short for Beth)

    ReplyDelete
    Replies
    1. Thanks Beth, it's a little slow going but I'm getting there. So did you recover fully from losing your sense of taste and smell? As for ice cream, I couldn’t get enough of Turkey Hill Banana Split 😋

      Delete
    2. Yum..yes I did it only lasted a few days but an interesting few days at that!

      Delete
  14. Hi Doug, I am very late to the party here! SO GLAD to read you are feeling 70% better. Covid certainly affected you in many ways. All your friends at the senior centre must really miss you. I hope you will be able to get back there in time.
    No ice cream??? I am a big frozen yogurt fan. But since Christmas the price has sky rocketed. I paid $2.99 a tub then, the last time I purchased it. I looked yesterday while grocery shopping and it is $7.49 now. I certainly won’t pay that.
    Looking forward to the funny neighbour story.
    Take care.❤️
    Robin

    ReplyDelete
    Replies
    1. Thanks very much Robin, I appreciate your positive feedback. To be honest, the 70% reduction in inflammation was short-lived, keep experiencing some awful setbacks. I don't know when this is going to end. (Sorry, just in a down mood.) I miss the folks at the center a lot, still hoping to make it there this summer? And yikes about the price of your frozen yogurt. That is awful. (I was going to do a blog about groceries, I hope this doesn't last.) Thanks again for the kind words.

      Delete
  15. Like Don, I can tell you are on the mend. Your writing is starting to sound like you again! You know, if you're looking for weight loss tips...well...I'd suggest trying something other than long covid for the next 12 pounds. :)

    We all raise a toast to corners turned!

    ReplyDelete
    Replies
    1. Thanks Debby, but I gotta be honest--this isn't a "getting better" thing. I have days where I can manage the pain, and days I can't. But I very much agree there are far better ways to lose pounds haha :)

      Delete
  16. Dug, I wouldn't close your blog. Actually I look for it whenever I get on blogger. Sorry this is 3 days after you posted, but we've had company here for the eclipse. BTW, it was awesome!! (I just posted about it). Sounds like you may be getting better (slowly but surely?) Just be good to yourself and know there's always a light at the end of the tunnel. (not THAT TUNNEL, just an expression - ha!)

    ReplyDelete
    Replies
    1. Thank you Rian, and here it is April 12 and your comment just showed up. I am sorry, I wish I knew why it did that. Anyway, I'm glad you enjoyed Eclipse Day, and I am hoping & counting on that light at the end of the tunnel. Thanks again for your kindness. :^)

      Delete
  17. I'm so glad you're getting better, Doug! I'm terrified of Long Covid and now, through your posts, I understand why. Thank you for reminding us of its severity and how miserable it is to try to live with it. I hope it continues to go away!

    ReplyDelete
    Replies
    1. Thank you Margaret, to be honest I'm still having a tough time with this. I wake up every day in disbelief it's still here.

      Delete

Thanks for stopping by. I'm glad to hear from you and appreciate the time you take to comment.