Thursday, March 28, 2024

It’s getting better all the time… also, a sad goodbye to an old friend

Are you getting tired of my selfies?  I’m sorry, but I couldn’t let that hospital bed mugshot in my last post be the last pic you see of me. 

So, I’ve been taking 800mg gabapentin for one week now and it’s making a difference.  Well, in my skull at least.  It’s easing the cranial pressure, but does nothing for my orofacial pain.  I contacted Dr. Batal (who prescribed the Neurontin) and asked if I could take something like Tylenol too.  He said “Yes to Tylenol, no to Advil, Aleve, Naoproxen.”

I said thanks, maybe I’ll try to hold off on the Tylenol.  When he asked why, I said I was already taking 10 pills a day as it was. 

He said “10 pills?  You’re only supposed to be taking 8 of the Neurontin (gabapentin) daily.”  I reminded him I’m also taking two amlodipine a day for my high blood pressure.  This is crazy!

Anyway, I didn’t retouch this photo or anything (haha) but I DID take it in my bedroom under a soft light.  I know I’m no George Clooney, but I think I look a heck of a lot better than I did 2 weeks ago.  (But outside, it looks like I have 2 black eyes.)  I’m anxious to get the facial pain under control, but I’m nervous about leaving my apartment and going anywhere.  I feel very drugged from all the gabapentin.  I couldn’t walk a straight line if you paid me to.

I’m getting there though.  And right now I feel pretty fortunate.

This past Sunday, my sister Shawn texted me and said “Did you know Mike Pikula died?”  No I didn’t, and it shocked me greatly.  Back in 1980, a year after high school, I landed a full-time job at Murphy’s Mart (a new discount retail store like Wal-Mart in our hometown).  I quickly became friends with several people my age—Brenda, Rita, Kim, Rob, Mark, Mike.  Most of us hung out at Brenda’s house on Saturday nights, ate snacks and played board games and watched television together.

Mike & Brenda fell in love and got married in 1986, but we remained close until I moved to Pittsburgh a year later.  We pretty much lost contact for 30 years, until 2017 when my sister talked me into moving back to Waynesburg.  That didn’t work out, but before I moved back to the city I had a reunion with Mike & Brenda and we went out to dinner at Burgatory (an upscale hamburger joint) and then to La-Z-Boy Furniture where they helped me pick out a new couch.  The same one I’m sitting on right now.

I made Mike do a test sit, recline & lie-down on every sofa we looked at and give it a comfort rating—he happily obliged and it was just like the old days. 

It hardly seemed like 30 years had passed, we laughed so much that night and had such a great time.

Mike died of cancer a week ago, surrounded by his wife, children and grandchildren.  My heart hurts for Brenny Lou, I can’t believe he’s gone.  Rest in peace, Mike.

46 comments:

  1. Happy to see you're on the upswing! Sorry for the loss of your friend. Hope you can get out and enjoy some Spring weather soon.

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    1. Thank you Bobi, much appreciated. 🙂

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    2. I’m sorry for your loss it’s hard to lose a friend

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    3. And I hope you feel better

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  2. So sorry to read about Mike. Always sad to say good-bye. The Gabapentin works wonders for my neuropathy. I can't do without it. David has been staying indoors for more than 3 months, and his face has lost its sun tan. We are hoping he can learn to walk down the ramp soon and enjoy the front yard.

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    1. Thanks Gigi, and I look forward to seeing updates on David on Gigi Hawaii. I know his health issues have been hard on both of you.

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  3. Doug, you look great! I'm so glad that the gabapentin is helping you. You've struggled for so long, and at last it seems like you have turned a corner.

    I'm so sorry for the loss of your friend. We're at that age, where we are starting to lose friends/family. I remember when I was in my 30's (wayyyyy back!) that I thought about the fact that I hadn't experienced the death of anyone close to me. I couldn't imagine at the time, what it might feel like. And of course now, I know only too well the grief, sadness and sense of loss when someone we know passes.

    By the way, when I first saw the title of your blog I thought for a minute that you were saying goodbye to blogging! So glad that I misinterpreted that. Hang in there; we're all so glad you are starting to feel better.

    Carole

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    1. Carole, thanks so much for this very kind message. (And sorry for the misleading title, why didn't I see that sooner). I know just what you mean about not experiencing death fully until your 30s. I lost a grandfather I wasn't close to when I was 20 years old but was 35 when I lost my grandma and it hit me like a wall of bricks. It's definitely one sad thing about getting old.

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  4. I am so sorry about the loss of your friend. I am glad you reconnected and have a pleasant memory.

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  5. You do look much improved! That's such a positive; I know it was depressing and felt like the pain would be forever. So sorry about your friend. Cancer is evil.

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    1. Thank you Margaret, and yes cancer is evil :^(

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  6. My husband takes gabapentin. It has some side effects. Apparently different for everyone. One thing seems to be with speech. Things like using the wrong word for something when you know the correct word. My husband has been a long term user due to an injury that caused leg pain. The gabapentin is used in conjunction with another drug to control the pain. A lot of unnecessary information….to get to my point. His dosage was increased at one time. My husband started talking nonstop. Outrageously nonstop. To the point I just wanted to cry from the overwhelming talking. We are retired so we spend a lot of time together.

    I didn’t realize what caused the talking thing until I happened upon an article about the side effects of that drug. When his dosage was reduced back to the original, the over-talking went away.

    I’m guessing that since you live alone, that has not been a problem unless you talk to yourself. 🤨

    I took it one time and felt like I was living on another planet. I took myself off.

    I hope your good health returns to normal. BTW, my husband takes 2 per day of a very low dosage. At 8 per day I can’t imagine the effects you are feeling.

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    1. Thanks very much for sharing Anon (who is this), I'm sorry for what your husband put you through but it was still fascinating to read. Yes the 800 mg make me incredibly dozey, dizzy. No talking, just feel very slow in my thinking and movements. What a weird drug this is. Thank you again.

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  7. Sorry to hear you are still in discomfort. Maybe a couple more weeks?

    How sad to lose a friend, and at such a young age. We attended the funeral of a friend yesterday who died at the beginning of March. Although he had been diagnosed with liver cancer, his treatments were going well, but his kidneys failed. He was 75, decorated Vietnam veteran. It was a lovely ceremony, and actually a whole day was spent with the family and friends. Our daughters were all good friends in middle and high school so we knew a lot of people in common. But, still too young.

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    1. Thanks dkzody, yes I am hoping for normalcy in a couple more weeks but I keep having infernal setbacks. Can't explain it. I'm very sorry about your friend, but this was a nice read still. Thank you for sharing it here.

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  8. Doug, you look so much better! I am very sorry about Mike’s passing. I am glad you had a good time your last time with him. Best not to be wandering around outside while you are so loopey! Hopefully you can cut back on the drug in the near future.
    Take care and have a nice Easter.❤️
    Robin

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    1. Robin you always say the best things, thank you. I still can't believe Mike's gone, I hope I can talk to Brenda soon. And yes, the meds are heavy duty. I tried skipping the third dose yesterday, but an hour or so later, I felt things going downhill fast. I hate being on meds, but at least I've got them. Hope you have a nice Easter as well. :^)

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  9. I'm thrilled to hear that the pain in your head is dissipating. I do hope the affects of the gabapentin ease off. However, if you can't walk a straight line, you should consider an ocean cruise...no one will notice. :p

    My sympathies on the passing of your friend Mike. Cancer truly sucks!

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    1. Maebeme, you gave me a chuckle here! Thanks for the laugh and the kind words about Mike. WAY too young to go. You're so right, cancer sucks awful.

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  10. That’s a good photo of you Doug, but what do I know – I’m a bloke.

    Eight pills? How do you keep track of them all? I’m down to two which is easily manageable. I hope those pills bring you through, or at least improve things considerably.

    When you get to our age (well, my age; I look over my shoulder and you’re quite a way behind me) people start dying on us. Just in the last three years there were three good friends and my sister and her husband. I imagine this will continue, probably accelerate until I’m the one, then it won’t matter anymore.
    Well, that turned cheery.

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    1. Peter, thanks very much for the compliment and I think you know plenty. :^) The eight pills are taken in groups of 2--- 2 at 7am, 2 at noon, 2 at 5pm, 2 at 10pm. I thought it'd be too much, but just when the painful pressure begins to creep in.. time for the next dose. Anyway, I sure am sorry for your own personal losses, I know it's not going to get any better the older I get. But as always, I very much appreciate your feedback here, it certainly cheers me up. :^)

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  11. Recovery is almost as big a pain in the butt as the original problem!

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    1. Thanks Joanne, couldn't agree more. Plus I keep getting nasty setbacks.

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  12. I am glad that you're feeling somewhat better, and yes you look much better than you did in your last two posts.

    I'm sorry about your friend. It is such a jolt when we begin to lose our contemporaries.

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    1. Thanks Debby. I am actually having a setback right now, hoping it's temporary. And yes, losing g our contemporaries... well put.

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  13. Two amlo a day? Is that usual? I take one. I haven't kept in touch with anyone from school, never was close friends with anyone, so I have no idea if anyone has died or not.

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    1. River, I meant one amlodipine and 1 carvedidol, sorry about that.

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  14. It's 10:30 pm here and just checking posts before going to bed. Thought I'd better comment today and see if it doesn't go to spam. You do look much better and sound like you're feeling a little better. 8 pills a day seem like a lot, but if it takes that to work... Actually my oldest son and his wife just came down with covid last week. After what has happened to you, I'm so worried about them... and any after-covid effects. Do take care and hang in there. Hopefully each day will be a little better. And I'm sorry to hear about your friend.

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    1. Thanks for writing Rian, I'm glad your comment didn't go directly to spam. I hate to say it, I was having a good morning yesterday but things have gone downhill again pretty fast. I sure am sorry to read about your son and his wife, the good thing is that most people don't have to deal with long covid issues. Thanks for your good wishes much appreciated.

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  15. I would definitely say you look better. Good to hear that they are making some progress with your symptoms. I tried to take Neurontin once - 2 pills and I was walking into walls at work. Definitely would have to be at home if I took it again!
    Sorry to hear about the loss of your friend. I guess it is one of the downsides of our age.

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    1. Thanks very much ladybug, slowly but surely I am getting there. Thank you fir the kind words about my old friend, and for the chuckle regarding the Neurontin. YES--I am stumbling everywhere I go!

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  16. I think you look better, too. I know nothing about that drug, but from all the comments, I hope soon you will be able to start reducing the dose. And at my age (over eighty), I have lost many friends and family and know it will just keep on like this until it's me, and then I won't care anymore. Sending you virtual hugs!!!

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    1. Thank you kindly DJan, this blog was written on a good day this week and hoping thse become the norm. As for losing loved ones, I'm sure you have many stories to tell. Thank uou for the hugs, I'm hugging uou right back. 🙂

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  17. You really do look better - and that’s so good to see . Be kind to yourself as you have been through a trauma, and need to recover - and fresh air and some Vitamin D from the sun will help
    I am sorry to hear of your friends death . My husband died a year ago - it was the first anniversary last Monday - and life is impossibly hard without him
    Keep on focusing on getting well
    Siobhan

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    1. Thank you Siobhan, you're very kind. Unfortunately I keep having setbacks, but I'm getting there. And I am very sorry for the loss of your husband, it sounds like your time together was brief but very special. You will be in my prayers tonight. 🙏

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  18. You do look better, and also sound better - hope you are getting enough and the right stuff to eat! Maybe the spring weather will give you a boost too.

    Sorry to hear about your friend; it's always a shock to lose a contemporary.

    Warm regards,

    Ceci

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    1. Thanks very much Ceci; as soon as I'm a little more pain free, I'm going to reach out to my old friend Brenda, I still can't believe it. I hope you are well.

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  19. Long time reader here. What a cute picture of you! Keep getting better. And I am sorry about the loss of your friend. Cheri

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    1. Cherie, you need to comment more! Just kidding, thank you for your sweet words here. Happy Easter. 🙂

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  20. I’m sorry for your loss..it’s hard to lose a friend..and I hope you feel better ❤️‍🩹

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    1. Thank you Anon (wish I knew your name).. Happy Easter 🐰

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    2. A harmless blog follower..Beth..Happy Easter to you too!

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    3. Actually, you DO look at bit like George Clooney! Sorry about your friend, but glad you're getting better. Take care.

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    4. Nice! Thanks very much. 🙂

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